We've been lucky so far; no real medical issues, although a few close shaves; no real behavio(u)r issues (although I do realise it's early days); so I don't have to become a roaring mother bear very often on behalf of my cubs. But this week I'm raging. Aploplectic even.
The Queenager has been diagnosed with a fairly significant learning disability since 2001. A bit like dyslexia only it affects math(s) and spelling, plus some spatial and processing issues thrown in. In short, she sometimes has a hard time of it and has to work really hard to stay on top of it. Like many kids with these challenges however, she scores very highly in some subjects and really low in others so the average numbers look, well, average.
Anyway, she's a junior in high school (Lower 6th) and is about to start taking the exams she'll need to get into most colleges. (American kids apply by the end of the calendar year and generally know where they're going before leaving school.) If she were to take the SAT test, she is allowed extra time, a quiet room, stop-the-clock breaks and a computer instead of writing by hand. She needs all of this to finish the test on time. Like many kids however, the ACT test (just another board of similar exams) is better for her. The questions are easier to understand and the math component is less advanced. Unbelievably, ACT have turned down all her requests for accommodations (ie. extra time etc.)
Despite the fact that we have professional diagnostic reports dating back to 2001, and a letter from her neurologist advising the breaks to prevent migraines, they are saying that she's average, and further more, they don't have to rely on advice and/or reports from a third party. It's as if they haven't read the reports at all. And BTW, given that we probably wouldn't be allowed to self-diagnose her problems, what's the point of asking for reports if you're going to turn round and say they don't mean anything?
There is a lot of tension in the house at the moment, and it's hard for me to "behave normally" because I'm so upset for her. It is inconceivable that some of her peers are getting extra time because of "text anxiety" that has just been diagnosed this past year, and yet we are being told there's not enough of a paper trail, and not enough proof of impairment for my daughter. It is hard enough for these children in school and in life without having to put up with this kind of idiocy. It's like giving a colo(u)r blind child a multi-toned bar chart to read.
Anyhoo, I am learning to breathe again, and we are appealing the decision. I dread to think what will happen if they turn down our appeal though.